I first heard about Now I Can from a news story done by KSL. (You can view it here: KSL Now I Can story). As with so many things involving Ben’s care, it was by luck and chance I even saw the story. My sister saw the teaser and called to tell me to DVR it. After watching it with my husband later that night, I said through tears, ”We have to go.” With a little more luck and chance, we were able to get in for an evaluation about ten days later, and we got into our first session about a month after that. I was willing to do whatever it took to pay for the therapy, but we are fortunate that our insurance covers the cost.
That first session was hard. Ben cried a lot. I had left my four-year-old daughter for the first time. We went home on the weekends, but life in general had been disrupted. It was just difficult from every angle. However, we saw great improvements in Ben’s trunk strength and control and in range of motion. His regular therapists back home noticed a difference. Also, when he returned to preschool in August, his school therapist asked, “Did he go to therapy somewhere over the summer?” She, too, was amazed by his progress.
We are now wrapping up our third session. My daughter came with us this time. She has been incredibly well behaved. One thing I have really loved is seeing her pride in Ben and her excitement for his progress. Ben has hardly cried this time. He has told me that he doesn’t like it when “they pull on his muscles.” He has told me that he wishes it was Friday, so we could go home. He has told me that he doesn’t think he should go to Now I Can today. But through it all, he has worked hard; and he’s making great strides. He has walked in a walker with minimal supervision for the first time. Ben teaches me that we can do hard things.
The staff at Now I Can has been amazing through all of our experiences here. I feel that they are invested in Ben’s progress, and I feel that they are willing to do whatever they can to make this experience easier for our entire family. Additionally, I have to tell you about the amazing volunteers at Now I Can. They are all so great, and one or two have really connected with Ben. They make up stories at his bidding and in general do whatever they can to keep him focused and make his therapy fun.
If you’re wondering what it’s like to take your child to Now I Can, especially if you are from out of town, I will tell you: It’s hard. It’s hard to be away from home and family. It’s hard to watch your child struggle through his or her challenges and to sometimes push through the pain. It’s just plain hard. But here is where I’ll borrow a quote: “It’s supposed to hard…The ‘hard’ is what makes it great.”